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Showing posts from September, 2015

My Birthday!

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September 17, 2015 (My Birthday!!!) I guess that I am not a great Blogger in that I do not post as often as I should…but I am REAL GOOD at responding to readers who read this blog and are interested in learning more about Marfan’s Syndrome! Over the last year I have been in touch with Jeffery, Rose, Sharmaine, and John who have all been happy to find they were not alone in the world and were glad to compare notes with others with Marfan’s.  Rose, a college professor, even visited us here in CDO and each of you has an invitation, but maybe not all at the same time!  Here is a photo of Rose and myself: The most common feature of Marfan’s that we seem to share is the problem of dislocated lenses.  The on-line research my Uncle Joe did when I was first diagnosed indicated that the best option was to get the lenses removed and wear tri-focal glasses.  Replacing the lens, which is common for “normal,” non-Marfan eyes, was NOT RECOMMENDED for me because the connective tissue w