Through my uncle's eyes...

My uncle has tried to help me deal with Marfan's Syndrome and he wrote notes and short stories about my experiences over the last five years. He recently combined these into one story and published it on a website for aspiring writers, scribd.com. If you want to see Marfan's through someone else's eyes, visit
http://www.scribd.com/doc/21612650/Marfan-Story

Comments

  1. UnknownSeptember 11, 2013 at 8:34 AM

    Good day madam! Eto na po yung mga tanong, salamat po talaga at pumayag kayo.. nahihirapan na po kasi talaga kaming maghanap..hehehe..salamat po talaga.

    Name:
    Mother:
    Father:
    Sibling/s:

    Age:
    Address:
    Doctor:
    Height:
    Weight:
    Length of the arm (17 years old):
    Length of the arm now:

    1. Kalian pa po kayo mayroong marfan syndrome?
    2. Ano po yung mga problemang nararanasan nyo noon hanggang ngayon physically, emotionally, mentally and spiritually since you’ve had marfan syndrome?
    3. Family history of the disease. (para po dun sa pe degree)
    -kanino po nagsimula sa pamilya nyo at sino sino po yung mga nagkaroon bago po kayo? (pwede din po bang maisama yung names po nila?)
    4. ano po yung mga adaptations ng pamilya nyo sa sakit na marfan syndrome?
    Tsaka po pwede po bang makahingi ng pictures nyo po at ng iba nyo pang kapamilya na nagkaroon ng marfan syndrome? Tsaka po medical certificate na mayroon kayong marfan syndrome, hindi po kasi kami paniniwalaan ng professor namin..hehe .Napaka demanding po kasi nun… salamat po ng marami madam hindi nyo po alam kung pano po kayo nakatulong sa amin, hehehe..salamat po talaga at naishare nyo kung ano ang meron kayo.

    ReplyDelete
  2. UnknownAugust 17, 2015 at 7:48 PM

    Hi. I am a psychology student and I am currently having a case study in Genetics. My case was Marfan Syndrome but unfortunately wala po akong mahanap na subject na may Marfan Syndrome. Sana po ay matulungan niyo ako, ikaw na lang po ang pag-asa ko sa case study ko, Please contact or message me if you are interested. This is my contact # 09064861730, this is my facebook account Rocel Mangunay Taala. Please consider my favor. Thank you in advance and GODBLESS!!!

    ReplyDelete

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