It has been three years or so since I had my eye and heart surgeries. A lot has happened in those four years, and my life direction has changed. When I was in elementary and high school, before I had my eye and heart surgeries and before I even knew I had Marfan’s Syndrome, I noticed that I easily got tired playing with my cousins and in some of my activities at school. I remember my struggles in high school military training – although I accomplished the training, sometimes I felt like I was climbing Mount Everest! My vision was also bad, but, because we lived in the countryside and had very little medical treatment available, I just had second-hand glasses. Then I went to the city for college, and during my first year we discovered I had Marfan’s. My eyesight had became so bad that my aunt and uncle asked me to find the best eye doctor available and get prescription glasses. We were all startled and confused when the eye doctor said I had “dislocated lenses,” but my uncle went...
Good day madam! Eto na po yung mga tanong, salamat po talaga at pumayag kayo.. nahihirapan na po kasi talaga kaming maghanap..hehehe..salamat po talaga.
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1. Kalian pa po kayo mayroong marfan syndrome?
2. Ano po yung mga problemang nararanasan nyo noon hanggang ngayon physically, emotionally, mentally and spiritually since you’ve had marfan syndrome?
3. Family history of the disease. (para po dun sa pe degree)
-kanino po nagsimula sa pamilya nyo at sino sino po yung mga nagkaroon bago po kayo? (pwede din po bang maisama yung names po nila?)
4. ano po yung mga adaptations ng pamilya nyo sa sakit na marfan syndrome?
Tsaka po pwede po bang makahingi ng pictures nyo po at ng iba nyo pang kapamilya na nagkaroon ng marfan syndrome? Tsaka po medical certificate na mayroon kayong marfan syndrome, hindi po kasi kami paniniwalaan ng professor namin..hehe .Napaka demanding po kasi nun… salamat po ng marami madam hindi nyo po alam kung pano po kayo nakatulong sa amin, hehehe..salamat po talaga at naishare nyo kung ano ang meron kayo.
Hi. I am a psychology student and I am currently having a case study in Genetics. My case was Marfan Syndrome but unfortunately wala po akong mahanap na subject na may Marfan Syndrome. Sana po ay matulungan niyo ako, ikaw na lang po ang pag-asa ko sa case study ko, Please contact or message me if you are interested. This is my contact # 09064861730, this is my facebook account Rocel Mangunay Taala. Please consider my favor. Thank you in advance and GODBLESS!!!
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